Dystonia is a form of movement disorder that has evolved into its own specialty area for treatment.
The definition of Dystonia is:
A movement disorder that causes the muscles to contract and spasm involuntarily. The neurological mechanism that makes muscles relax when they are not in use does not function properly. Opposing muscles often contract simultaneously as if they are 'competing' for control of a body part. The involuntary muscle contractions force the body into repetitive and often twisting movements as well as awkward, irregular postures. There are multiple forms of dystonia, and dozens of diseases and conditions include dystonia as a major symptom.
(Def.-Dystonia Medical Research Foundation)
As noted above, there are different forms of dystonia. Some forms evolve as a primary diagnosis for some people, and others develop dystonia as a secondary clinical feature apart from a primary diagnosis of another condition, (for example) Parkinson's Disease.
There are treatments available that can be life changing for people struggling with dystonia.Medication, chemodenervation and deep brain stimulation are a few that you can look into.
It is very important to know that you are not alone with this disease. Cervical dystonia is a very common form of dystonia and can be an underlying cause of severe muscle tension headaches. It is helpful to see a neurologist who treats movement disorders for an accurate diagnosis and treatment options. Many times people will complain of neck and shoulder pain and receive muscle relaxers and massage therapy prescriptions from their primary care physicians. No long lasting improvement is noted and it is a vicious, frustrating cycle.
The Dystonia Research Foundation has a video on their web site associated with starting a Dystonia Support Group, which is proof that "regular people" can start a support group and help one another. You can see this video here and let us know if you would like more information. Send us your comments through "Contact us!" "Now, let's get going!" xo Sally
If you would like to learn more about Sally Thimm OTR/L Occupational Therapy Services visit: Professional Case Management of SWFL